Monday, 9th August 2010
Kos from Asklepieion June 2010
Well as weeks go this has not been a bad one, but the pain continues unabated.
I have been on Morphine for over 2 years now, it the only thing that takes away the bad pain. It never take the pain away completely it’s always there but, the patches I am now on are a lot better than the Oxycotin tablets I was on before. For the most part the headaches have gone and so has the perpetual fog… the non stop, unable to focus. One side effect of the drug is I have been slowly losing my teeth, they have been slowly but surely degenerating, some have just fallen out other just break off, for example just eating a butty. Either way I hate the way I look, my dentist as at least empathetic to my plight and is going her best to sort me out. But my roots remain strong, my last extraction took 25 minutes to remove and left me so tender, that was 2 months ago and I am still sore from the experience.
Like I said this past week has been a reasonable one, for a change. My sleep pattern is far from ideal at the most I get 2 hours before I wake up, and most times I take an age to go back to sleep, sometimes I am awake all night. I went back to my doctors to ask for help with my third day pain (At the moment I am on patches, which I change every third day, but the third day has been hell on earth for me. I take Paracetamol, which really doesn’t help one little bit apart from making me tired. So I tend to sleep a lot on my second day!!! I am told I had a glazed expression and if I was at work I would have to go home, go to bed and try to sleep until my next change of Morphine). Well the doc was helpful, I was dreading seeing him again after the argument of a few weeks ago when I first asked for patches. Now I am on Solpadol a mixture of Paracetamol and Codeine, now the pain is tolerable and I can function on my third day. Like I said the pain is always there, it never goes away, I just have to do what I have to do to get through my pain and my day.
Talking of pain I have been referred to the Pain Clinic again and have had to fill out a long questionnaire about my lifestyle and my pain. I went to the clinic a few years back, I think it helped then; time will tell if they can help this time. I was a lot stronger then, I know I have lost a lot of upper body strength over the years. I know when I was in my wheelchair a while ago I was unable to propel myself, guess this must be an age thing.
DDF is going well and I am so enjoying the work still, and the people are lovely, at least I am still getting a buzz out of helping people. As long as that is still there then I shall continue going along…. As long as they still want and need me.
Another lift company called during the week and measured me up for a replacement lift. At least this one sounded more promising, I will be having a seat which will face ¾ down the stairs as there is not enough room to go up side on. That was always a problem, my stairwell is quite narrow and Stannah, the first lift company couldn’t / wouldn’t help. The costing still has to be approved so its fingers crossed!!!
Went out for a very rare night out last Friday with the girls from DDF and had a good night at Table Table in Rhuddlan. The meal was good; the service was excellent as was our waitress. The only down side was they dimmed the lights later on and I had trouble lipreading / hearing the conversation and so the last couple of hours I did not enjoy, up till then the company was good too. I so hate being deaf, especially when I have no control over the environment.
This weekend was Rhyl Air show a two day event, but the weather especially on the first day was awful and together with technical problems not a lot took place. I have always enjoyed air shows and do not get to enough of them, so to get one literally on my doorstep cannot be missed. The weather on the first day deteriorated so much the Falcons team could not do their display, luckily they managed on the second day. I was disappointed at not staying for the Lancaster but I got myself very cold and had to come home… went to bed to get warm again. The Sunday was a lot better and I managed to take a lot of photographs. I really must make an effort to get to a proper display next year it’s been a good few years since my last one. I get so cold these days and so tired.
